Wednesday, August 7, 2019

Day 303

Found:  Boobs. 

Yay!!  They found my boobs and they've been "installed"!  Found out why they weren't there the day of my surgery.  With the big recall on textured implants, apparently nothing shipped from Allergan, including my non-textured implants.  Still doesn't explain the breakdown in the process that allowed me even to get to the hospital that day, but hey.  Moving forward.

After my surgery on Monday (which went so smoothly and my blood pressure stayed strong at 110/73 - YES!!!)  I ended up overdoing it on the two days after my surgery, which resulted in a fever and me laying in bed for (almost) the remainder of the week.  I should learn but I won't.  But, besides the incredible bruising and pain on the right side, I think everything looks just great! 

And they are so much softer than the tissue expanders which is great, and I can move my arms over my head now.  I guess how the tissue expanders are inserted and mounted onto your body, it restricts range of motion in your arms, so that is an immediate and welcome side effect.  I'll start PT soon and hopefully that helps with strength and adding more range. I'll likely have to do yet another surgery to correct the damage under my arms too.

The plan now that my chemo has been ordered and approved by insurance is I will start Xeloda on 8/20.  I am going to make the most of the time between treatments and enjoy myself   I even went to a concert last night and saw Berlin, OMD, and the B-52's and it clocked my ass, but I had so much fun!!   I am preparing for the four months of oral chemo to be not great.  Even though I have been assured it's easier, I've heard that before (see Day 105).  If you know me, you know my love of flip flops and I won't be allowed to sport my favorite shoe while I am on this chemo since friction can increase the chances of developing palmar-plantar erythrodysesthesia (hand and foot syndrome), which is basically huge burning blisters on your hands and feet.  Nice, right?  Don't forget the diarrhea.  Where can I sign up?!?!  I know I can do it.  Shit, I made it through the four months of IV chemo, but.  It's a hard thing to do to sign up willingly to poison your body but if I don't do this and it comes back, I could never live with that guilt, so poison it is!  I am very hopeful that this will do the trick and I will finally hear the words NED or remission.  Something that has never come up in any of my conversations with my oncology team.  Crossing my fingers so hard!!  I really need to hear that and the fact that I haven't is a heavy burden. 

And, the best most amazing/incredible/crazy news!!  Remember when I said a few weeks ago that I had the hugest surprise??  Well!!!  My company, Associa, has embraced my journey in fighting cancer, and has given me a platform to reach hundreds, even maybe thousands, of my work family to stress the importance of being proactive in our wellness.  A subject that you may know is very near and dear to my heart.  It's a two part series, and I will share the second part when it comes out.  I am so grateful that I am part of a company that has been so supportive.  Words cannot even say enough.  

I wanted to extend my message to all of you too, first and foremost, because I truly care.  And also because even if you haven't hit the career jackpot and are lucky enough to work for Associa like me, the importance of my message is the same.  I'm not trying to be preachy, I want to inspire. I know I say "ummm" a lot in the video. Just trying to #keepitreal.

****hopping on soapbox now****

Be involved in your wellness.  And by involved, I mean actively seek to have an intimate knowledge of your health.  Advocate for yourself and be proactive.  Ignorance is not bliss.  Please don't take your health for granted, even if you feel invincible.  Knowing is power.  Be there for yourself and the ones that love you. Get an annual wellness exam.  It saved my life.  If anyone can learn and change their habits from my vulnerability in sharing my story, then I have achieved my goal.

****stepping down****

Love you all.  Video is below.  Please take a few minutes to watch.


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